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mopinko

(72,778 posts)
24. ya know,
Wed Apr 23, 2025, 08:23 AM
Apr 23

almost every older woman i’ve told my story to knows someone who nearly died from this ‘common problem’. i shd dig into the stats, but i bet it’s more women than men who end up on the table too late.
i came so damn close. i only lost a foot, but a dear friend’s story was of a woman who lost 3’.
i also had some spread. my bladder is pretty badly fibrosed, too.
the shitty docs swore to me i had ‘no active disease or inflammation’.

i dont know how close i was to dead, but i was damn close to a heart attack. mostly from the dehydration. they had a hella time getting my electrolytes stabilized. dont know if that is common. close enough to go to the front of the line in probably the busiest er in chicago.

the whole story of this is def 1 of bad times in my life. started getting bad in 2020 and it’s been like walking around w an invisible 50lb field pack on my back. starting to feel like my old self, realizing i barely recognize it.

glad we both made it. only good thing here is that it is over. that’s my consolation. not something i’ll b worrying about forever.

Recommendations

2 members have recommended this reply (displayed in chronological order):

I know nothing about Ostomys. Is this an intestinal thing? A tear or something? OAITW r.2.0 Apr 18 #1
yeah, they severed my large and small intestines to let my resection heal. mopinko Apr 18 #2
I thought wearing a urine bag with tube up my uretha was awful.....piece of cake compared to your situ. OAITW r.2.0 Apr 18 #3
well, i sure have a story to tell. mopinko Apr 18 #4
Not many people have our experiences. OAITW r.2.0 Apr 18 #5
An ostomy is a "bypass," so to speak, of the normal passage of urine or solid waste... 3catwoman3 Apr 18 #7
The less I know about potential health conditions....the happier I am. OAITW r.2.0 Apr 18 #8
I'm so pleased to hear that you like your NP. I retired 4 years ago after... 3catwoman3 Apr 18 #10
i've had np's and liked them. mopinko Apr 18 #12
You know why NP's are great. OAITW r.2.0 Apr 18 #15
well i do now and i sure wish i didnt. mopinko Apr 18 #9
Yay, Chicago! Access to top shelf health care is the main reason I will never live anywhere rural... 3catwoman3 Apr 18 #13
i've been in the northshore/endeavor system for a long time. was happy w my care til the plague. mopinko Apr 18 #14
If the nurses like a doctor, that's generally very reassuring. We know how to tell the good ones. 3catwoman3 Apr 19 #16
ya know, the nurses i had at the hospital mopinko Apr 19 #19
The biggest reason it was time to retire 4 years ago was electronic health records - EHR. 3catwoman3 Apr 19 #20
ya know, i had a rheumie that i rly liked mopinko Apr 19 #21
The biggest problem I saw in EHR besides the aforementioned... 3catwoman3 Apr 19 #22
mopinko, I am sorry that you are so uncomfortable and miserable. madaboutharry Apr 18 #6
it's frustrating, tho. i've worked hard at recovering. mopinko Apr 18 #11
mopinko, madaboutharry Apr 19 #17
. mopinko Apr 19 #18
giant yuck CountAllVotes Apr 23 #23
ya know, mopinko Apr 23 #24
They ignored me for years CountAllVotes Apr 23 #25
constipated zombie mopinko Apr 23 #27
Yes, but for urine. It has downsides, but also has upsides. I've had it since 2019 ... marble falls Apr 23 #26
i can see where it has upsides. mopinko Apr 23 #28
Oh jeeeez, the folley. Part of trying to prevent taking the bladder, they took tumors out surgically ... marble falls Apr 23 #30
"I can drive through to the next fuel stop" TexLaProgressive Apr 23 #41
2nd hand smoke is major, too. I'll use a night bag or a leg bag ... marble falls Apr 23 #42
I like the leg bag when I'm not in my retirement uniform TexLaProgressive Apr 23 #43
As a Missouri Synod Lutheran, I haven't worn shorts after about age 14 and Confirmation ... marble falls Apr 24 #44
I 3auld6phart Apr 23 #29
before it ruptured mopinko Apr 23 #31
Colonoscopy Topomi Apr 23 #32
I have a Urostomy not a colostomy TexLaProgressive Apr 23 #33
yeah, that's a pita. mopinko Apr 23 #34
I had to be treated by the WOC nurse 4 times TexLaProgressive Apr 23 #35
my fingers r crossed i get reversed b4 mopinko Apr 23 #36
Are you using a convex pouch and barrier ring? TexLaProgressive Apr 23 #37
yeah, got the convex. mopinko Apr 23 #38
Convex has worked out very well for me. marble falls Apr 23 #40
y'all, this thread is y du will always b home. mopinko Apr 23 #39
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