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DesertFlower

(11,649 posts)
9. i was diagnosed with chronic fatigue syndrome
Fri Feb 10, 2017, 02:29 AM
Feb 2017

26 years ago, but i think it started 2 years earlier after a case of walking pneumonia. one of the first things was insomnia. i was seeing a naturapath at the time and she wouldn't give me sleep meds even though i had researched the condition. sinequan and klonopin were recommended by the top experts in the field. i finally found a doctor who was recommended and after ruling out all other conditions he prescribed the meds for me. eventually i built up a tolerance and they stopped working. now i take 50 mg. of seroquel, but i can only take it if i don't have to get up the next day. it knocks me out and a lower dose doesn't work. i took it last night and didn't get up till after 2pm today. right now i should be sleeping, but as you can see i'm up. it's almost 11:30 pm here. the latest thing i've tried is magnesium which is supposed to be calming.

so many other conditions can be attributed to CFS/ME, incuding GERD, IBS, nausea, etc. i have some conditions that cannot be diagnosed even though i've seen specialists. it's got to be the CFS.

BTW. i was ill enough to qualify for SSDI. i was turned down twice and had to go before a judge, but got it retroactively.

i've tried IV vitamins and chelation therapy but neither helped. i do eat healthy and tried eliminating certain foods.

i've learned to live with it and do the best i can, but it sucks.

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