Chronic Health Conditions Discussion and Support

Nac Mac Feegle

(981 posts)

17. The daughter of a friend of mine has one of the variants of this

Reply to DeadLetterOffice (Original post)

Mon Jul 25, 2016, 04:25 AM

Jul 2016

She is a world class athlete, and will be competing in the upcoming Olympics.

It is a challenge, but her motto seems to be "Challenge Accepted!"

The advances in Medicine in the last decades are wondrous. Things that would kill or badly disable us are now often controllable or repairable.

From someone that "has been there" (for something else), a lot of how it affects you is how you let it affect you. Challenges can be accepted.

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Newly diagnosed with Ehlers-Danlos Syndrome... [View all] DeadLetterOffice Apr 2015 OP

I really am sorry for you and your kids. RGinNJ Apr 2015 #1

Thanks RG. DeadLetterOffice Apr 2015 #2

I just read up about it. dixiegrrrrl Apr 2015 #3

We've got the hypermobility subtype. DeadLetterOffice Apr 2015 #4

I had never heard of that until recently when I learned.. 2theleft Apr 2015 #5

I hope the best for you and your kids... Holly_Hobby May 2015 #6

I saw a genetic counselor to diagnose. DeadLetterOffice May 2015 #7

Ok, that makes sense... Holly_Hobby May 2015 #8

Good luck! DeadLetterOffice May 2015 #9

They say a geneticist is the best person to diagnose. I actually did a lot of research on my own Seeinghope Jun 2016 #15

I have not heard of this but I am glad you got a diagnosis. DawgHouse Jun 2015 #10

It really is. DeadLetterOffice Jun 2015 #11

So sorry, DeadLetterOffice. pnwmom Aug 2015 #12

Try not to do the guilt trip DeadLetterOffice Aug 2015 #13

Thanks, DLO pnwmom Aug 2015 #14

I am glad that you finally got a diagnosis. For me it connected all of the dots. Seeinghope Jun 2016 #16

Connected all my dots, too! DeadLetterOffice Jul 2016 #19

The daughter of a friend of mine has one of the variants of this Nac Mac Feegle Jul 2016 #17

I'm sure you mean well. DeadLetterOffice Jul 2016 #18

I have no intention of being condescending. Nac Mac Feegle Jul 2016 #20

Amen. DeadLetterOffice Aug 2016 #24

my daughter's pcp thinks she has this. mopinko Aug 2016 #21

just got dx'd myself Paula Sims Aug 2016 #22

Hypermobile (type 3) DeadLetterOffice Aug 2016 #23