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Chronic Health Conditions Discussion and Support

MindMover

(5,016 posts)

12. My family has been living with this terrible disease for a very long time ...

Reply to Warpy (Reply #11)

Mon Nov 11, 2013, 11:48 PM

Nov 2013

so looking it up has been our top priority ...

and your medical/healthcare community has not been exactly helpful in determining exactly what was happening to us for many years ...

it took until the 1940's to even give it a proper name and then it wasn't until the 60's that they knew it could be hereditary ...

Your misinformation/misunderstanding about the disease is not helpful ...

The standard today for diagnosis is a blood test, not an endoscopy ...

and changing your diet ASAP is recommended if you even have a hint of having celiac disease ...

and it takes months if not years in my daughters case to heal, if you can heal that is ...

some patients never do heal ...

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Anyone know anything about Celiac disease? nt [View all] arthritisR_US Nov 2013 OP

It's a potentially life threatening problem with digesting wheat Warpy Nov 2013 #1

I will suggest exactly the opposite of Warpy ... change your diet ... MindMover Nov 2013 #2

It's not as easy as all that for a long time Warpy Nov 2013 #4

I have had so much chronic symptomology but arthritisR_US Nov 2013 #6

The rib cage pain sounds like pleurisy cyberswede Dec 2013 #14

I've had pleurisy before brought on by immune system attacking the lining of my lungs arthritisR_US Dec 2013 #15

There is a simple blood test panel that will pick up many-- but not all -- cases pnwmom Feb 2015 #17

And I have a different point of view. pnwmom Jul 2015 #22

Thanks, last time I was supposed to have a arthritisR_US Nov 2013 #3

They anesthetize you now Warpy Nov 2013 #5

I could deal with that. I will have to inquire because arthritisR_US Nov 2013 #7

Actually, the blood tests ARE reliable for people who have classic Celiac. pnwmom Jul 2015 #23

I have celiac, my wife and daughter have celiac .... MindMover Nov 2013 #8

Which is anesthesia. Warpy Nov 2013 #9

Since 2001 .... how about you ... MindMover Nov 2013 #10

In health care starting in 1962 Warpy Nov 2013 #11

My family has been living with this terrible disease for a very long time ... MindMover Nov 2013 #12

But you mentioned a colonoscopy, and that isn't used to diagnose Celiac. nt pnwmom Jul 2015 #24

I have gluten sensitivity. And Warpy is correct pnwmom Feb 2015 #18

me MedHelp Dec 2013 #13

Celiac pertilotte Oct 2014 #16

Check out Wheat Belly, by William Davis, MD... free, at the library. Read it. Read his case libdem4life Feb 2015 #19

Here's a great almost instant Flax breakfast...full of protein and fiber libdem4life Feb 2015 #20

When my grandmother was about my age, she began having digestive symptoms Lydia Leftcoast Jun 2015 #21