General Discussion

IdaBriggs

(10,559 posts)

117. No, because cerebral palsy by definition is an incurable permanent mobility disorder.

Sun Dec 6, 2015, 03:04 PM

Dec 2015

What we found was an undiagnosed condition (growth retardation caused by preventable and correctable nutritional deficiency) that in 111 out of 134 cases was MIS-diagnosed as cerebral palsy because they saw improvement in their mobility levels and such. The younger they were, the faster they responded, and we have no data on children past twelve years of age/suspect those changes (if any) may be impacted by the long term deficiency issues and growth plate changes, etc.

No one can CURE cerebral palsy - the very idea is heresy!

And besides, if we had Real Proof (like video and data and physician observant - oh, wait! we do!) then Real Researchers would be all over it --

Ask me about the last cerebral palsy conference I attended. In the business world, we call the stuff they were doing "job security" because they KNOW they aren't required to actually make any new insights, let alone look at videos of "impossible" things (like little girls who get out of their wheelchairs on their own at age nine).

Edit history

Please sign in to view edit histories.

Recommendations

0 members have recommended this reply (displayed in chronological order):

158 replies

= new reply since forum marked as read

Highlight:

Me vs CP and DU (the long story, for those who don't know it) [View all] IdaBriggs Dec 2015 OP

Hi, Ida. bigwillq Dec 2015 #1

Yeah! How is your health? IdaBriggs Dec 2015 #2

Fraternal. bigwillq Dec 2015 #3

That is Awesome madokie Dec 2015 #4

Thank you! IdaBriggs Dec 2015 #60

Keep it up Ida TexasProgresive Dec 2015 #5

No, not a drug - a different understanding of one of the causes IdaBriggs Dec 2015 #61

I remember. sibelian Dec 2015 #6

Thank you, sibelian. IdaBriggs Dec 2015 #62

May good things come your way Ida elias49 Dec 2015 #7

Thank you! IdaBriggs Dec 2015 #63

i'm curious if you mean that you want her to make lots of money off the study she's been posting CreekDog Dec 2015 #132

ROFLMAO! "Make lots of money!" Please explain HOW. IdaBriggs Dec 2015 #142

Knr roody Dec 2015 #8

Thank you! IdaBriggs Dec 2015 #64

When the people who are supposed to help you MuseRider Dec 2015 #9

Thank you, Muserider. IdaBriggs Dec 2015 #65

I can't for the life of me figure out navarth Dec 2015 #10

Nature of the beast - some people are just mean on the Internet. IdaBriggs Dec 2015 #67

Well, in any event, thanks for your good work. navarth Dec 2015 #120

Thanks for sharing your experience. Skidmore Dec 2015 #11

Thank you! IdaBriggs Dec 2015 #68

Keep up the good work, Ida.. fascinating. mountain grammy Dec 2015 #12

Thank you! IdaBriggs Dec 2015 #69

I didn't know your story, but I am amazed at what you accomplished LiberalEsto Dec 2015 #13

Thank you, and let me confess - that happened sometimes! IdaBriggs Dec 2015 #70

What trace minerals did the kids in your study take? nt SunSeeker Dec 2015 #14

This may answer your question (and mine): Ghost Dog Dec 2015 #55

Take a look here -- IdaBriggs Dec 2015 #71

Thanks Ida. Will do. Ghost Dog Dec 2015 #97

I sent this by PM yesterday (family obligations). IdaBriggs Dec 2015 #72

I applaud you heaven05 Dec 2015 #15

Thank you - the courage of the families kept me going. IdaBriggs Dec 2015 #73

do they sign standard medical waivers for medical research? CreekDog Dec 2015 #131

Do you know what a feasibility study is? IdaBriggs Dec 2015 #141

K & R - Amazing, Ida!! Duppers Dec 2015 #16

(Blush) and THANK YOU! IdaBriggs Dec 2015 #74

Wow, amazing and thanks from the bottom of my heart. lark Dec 2015 #17

Thank YOU!!!! IdaBriggs Dec 2015 #75

Cool stuff. blackspade Dec 2015 #18

Curing a condition that by definition is incurable... IdaBriggs Dec 2015 #76

K&R! Never Give Up, Ida... MrMickeysMom Dec 2015 #19

My favorite NIH epidemiologist encouraged the "tough skin growth" - IdaBriggs Dec 2015 #77

It's people like you SCantiGOP Dec 2015 #20

Thank you! IdaBriggs Dec 2015 #78

Yes you won! BTW loved that line in your story. kydo Dec 2015 #21

Thank you! IdaBriggs Dec 2015 #79

At the very least, your treatment seems to cure "misdiagnosis"! Bernardo de La Paz Dec 2015 #22

Truth! When your child picks up their Walker and runs across a parking lot IdaBriggs Dec 2015 #80

Thank you, Ida, for putting your story out here. I guess you'll just have to continue step by step. NBachers Dec 2015 #23

Most welcome! And I like to think some of that was about IdaBriggs Dec 2015 #81

No- some of it's just trying to find a right & acceptable way to say shitty things to people. NBachers Dec 2015 #126

Lol! There is truth in that. Maybe we do it with our political beliefs, too? IdaBriggs Dec 2015 #129

Recommended. H2O Man Dec 2015 #24

Thank you! IdaBriggs Dec 2015 #82

What are these trace minerals? abelenkpe Dec 2015 #25

I sent you a PM as I had family obligations yesterday. IdaBriggs Dec 2015 #83

Been awhile since I've seen your name. I'll be watching for your posts Half-Century Man Dec 2015 #26

Thank you. A good friend (deceased) organized IdaBriggs Dec 2015 #84

As you have pointed out Half-Century Man Dec 2015 #99

Ida, you are an inspiration and PumpkinAle Dec 2015 #27

Thank you! IdaBriggs Dec 2015 #85

thanks or sharing, Ida--you are a woman after me own heart! librechik Dec 2015 #28

Thank you! IdaBriggs Dec 2015 #86

Good story! MaggieD Dec 2015 #29

Thank you - and you agree with the veterinary world because IdaBriggs Dec 2015 #87

Congrats, IdaBriggs. As someone who needs extra B-12 and magnesium pnwmom Dec 2015 #30

Thank you - absorption issues seem to be key in the autism subset IdaBriggs Dec 2015 #88

IdaBriggs. I remember that now! Autumn Dec 2015 #31

Thank you, and I will! IdaBriggs Dec 2015 #89

thank you for sharing. barbtries Dec 2015 #32

Thank you for reading and please do. IdaBriggs Dec 2015 #90

Wow fasttense Dec 2015 #33

Thank you and I am. IdaBriggs Dec 2015 #91

So glad you stuck with it UtahLib Dec 2015 #34

Thank you! IdaBriggs Dec 2015 #92

Good for you, Ida. PatrickforO Dec 2015 #35

Thank you for sharing your story and your support. IdaBriggs Dec 2015 #93

SO interesting. Great share. I am not a member of the preemie community, but am an avid medical/ joanbarnes Dec 2015 #36

Preach it. I have a few other examples, and have been IdaBriggs Dec 2015 #94

Good luck to you and the babies voteearlyvoteoften Dec 2015 #37

Apparently I am "somebody" - bless her wisdom! IdaBriggs Dec 2015 #95

My preemie is celebrating his 53rd birthday today! Glad all is well with you...n/t monmouth4 Dec 2015 #38

Thank you! IdaBriggs Dec 2015 #96

I am a great believer of "testimonials." question everything Dec 2015 #39

Thank you and I agree with you! IdaBriggs Dec 2015 #98

You should add a link to your OP Flying Squirrel Dec 2015 #40

The original is findable with an archive search -- IdaBriggs Dec 2015 #100

Thanks for sharing. Best of luck. nm rhett o rick Dec 2015 #41

Thank you! IdaBriggs Dec 2015 #101

THANK YOU! elleng Dec 2015 #42

Thank you! IdaBriggs Dec 2015 #102

:hug: you and your family, elleng Dec 2015 #107

Fascinating stuff. nt valerief Dec 2015 #43

Thank you! IdaBriggs Dec 2015 #103

THANK YOU for all you do & have done! K&R n/t Michigan-Arizona Dec 2015 #44

Thank you! IdaBriggs Dec 2015 #104

Keep up the great work! a2liberal Dec 2015 #45

Thank you! IdaBriggs Dec 2015 #105

You're welcome :) a2liberal Dec 2015 #122

Thanks for sharing your story and for your bbgrunt Dec 2015 #46

Thank you! IdaBriggs Dec 2015 #106

Some associated articles you might find interesting, if not helpful as well NotHardly Dec 2015 #47

We detailed out WHO and their use of Plumpy'Nut as one of the IdaBriggs Dec 2015 #108

The medical community in this country sucks emsimon33 Dec 2015 #48

I go back to my "bureaucracy not conspiracy" stance. IdaBriggs Dec 2015 #110

Post removed Post removed Dec 2015 #49

K&R... spanone Dec 2015 #50

Thank you. IdaBriggs Dec 2015 #111

Bookmarking to absorb in full later. I love good news. Hekate Dec 2015 #51

Thank you! IdaBriggs Dec 2015 #112

Brava!! marym625 Dec 2015 #52

I finally got to watch that movie this summer - the lines have NOT CHANGED! IdaBriggs Dec 2015 #113

something else you might find interesting marym625 Dec 2015 #119

k&r me b zola Dec 2015 #53

Thank you! IdaBriggs Dec 2015 #114

Somehow I managed to miss this whole thing over the years. JNelson6563 Dec 2015 #54

Truth! Thank you! IdaBriggs Dec 2015 #115

Interesting. And I would like FlaGranny Dec 2015 #56

Chromosomal abnormalities seem to be a consistent thread in that subgroup. IdaBriggs Dec 2015 #116

You found a cure for Cerebral Palsy? Iggo Dec 2015 #57

No, because cerebral palsy by definition is an incurable permanent mobility disorder. IdaBriggs Dec 2015 #117

Your situation reminds me of what happened when the Seattle doctor pnwmom Dec 2015 #123

Very interesting. panader0 Dec 2015 #58

Self correction works 85% of the time. IdaBriggs Dec 2015 #118

It is really irresponsible to keep repeating this project "success" on DU. Gormy Cuss Dec 2015 #59

This is something far more people in this thread need to read and understand mythology Dec 2015 #109

Who is going to fund research that challenges the paradigm and won't make a profit for anyone? pnwmom Dec 2015 #124

People like IdaBriggs figured out how important folate was in avoiding birth defects pnwmom Dec 2015 #121

A simple prophylactic, low risk intervention for premature infants would be worth millions Gormy Cuss Dec 2015 #133

No, it really wouldn't, because it involves preexisting supplements -- not some new drug. pnwmom Dec 2015 #134

Vitamin K shots Gormy Cuss Dec 2015 #150

In your dreams and don't I wish. IdaBriggs Dec 2015 #143

Yes, I recall. As you may remember, I have been working on this IdaBriggs Dec 2015 #128

Again, it is irresponsible for you to tout this as a proven intervention Gormy Cuss Dec 2015 #135

She ISN'T touting this as proven. She's reporting how hard she's been working to get attention pnwmom Dec 2015 #136

" 4 out of 5 see improvement" and 83% are both cited Gormy Cuss Dec 2015 #149

I kept reading the post, trying to find the proof of her numbers REP Dec 2015 #158

This is great, Blue_In_AK Dec 2015 #66

Thank you! IdaBriggs Dec 2015 #125

Holy Cats Ida!! haikugal Dec 2015 #127

Thank you! And yes, they are! IdaBriggs Dec 2015 #146

You are one awesome woman IdaBriggs! Generic Other Dec 2015 #130

Appreciate that but they kick the thread - maybe someone needs to see it? IdaBriggs Dec 2015 #147

No, the OP is the one who needs to zip it. Gormy Cuss Dec 2015 #153

Still won't sit down and shut up. IdaBriggs Dec 2015 #157

It took the American Academy of Pediatrics 14 years and 15 studies before they finally pnwmom Dec 2015 #137

Preach it. IdaBriggs Dec 2015 #148

Can you link to your 501 (c) 3? I can't find it with the IRS lookup tool or Charity Navigator. LeftyMom Dec 2015 #138

We are NOT 501(c)(3). We are a Michigan non-profit. IdaBriggs Dec 2015 #144

No, your Michigan non-profit status lapsed October 1, 2012. LeftyMom Dec 2015 #151

I'm seeing that your Michigan tax exempt status is Automatic Dissolution. LeftyMom Dec 2015 #139

You need to come to our next board meeting! IdaBriggs Dec 2015 #145

shows some foreclosure information on Zillow and Trulia snooper2 Dec 2015 #154

Sigh. Good to know. IdaBriggs Dec 2015 #155

Is this the website for the product you're suggesting people use? Because this sounds shady as hell. LeftyMom Dec 2015 #140

Thanks. Your posts and the hidden one on this thread should be read. PeaceNikki Dec 2015 #152

Wow. I wish people would read these posts. Starry Messenger Dec 2015 #156