Elder-caregivers
Related: About this forumI think I'm in over my head
Several weeks back I subbed for a another caregiver on a Saturday for a dementia client. I was told this dementia client has a tendency to wonder and her husband was having some serious surgery at the hospital. There was some sort of tumor removed from the back of his tongue.
The following Saturday I was asked if I could be there again. They needed someone and the wife really liked me. So it was asked if I could be a regular of at this house and I took the opportunity because it's less than a 10 minute drive compared to a 30 minute drive and it's giving me more hours.
On Monday of the 22nd I started at this home and apparently the wife hadn't been given her medication the night before so she was agitated on this morning. I arrived to relieve the other caregiver and this caregiver was waiting for a ride. Both the wife and husband were calling us squatters and threatening to call the police. I had to call their healthcare proxy and them know what was happening. I didn't know that they both had dementia and both had Silver Alerts.
By Thursday they're giving me hugs and telling me that they love me, which is good. I seem to be getting away with things that the other caregivers can't get away with. One of those things is getting the husband to change his clothes, although I still can't get anyone to bath or shower. I'm wondering I should ask the healthcare proxy for no rinse body wash.
Btw, the husband isn't as far gone as the wife is. I can get him fluids, food and clothing changes without any issues. Sorry if I repeat myself.
I'm use to being one on one care. I'm not use to caregiving for 2 separate people at the same time. Yes, my pay-rate went way up for doing this double work.
This is my second week in. There's other people coming in and out so there's not a set schedule and therefore I can't set a schedule. The people coming in and out are nurses, speech therapist, and a dietitian . The entire caregiving team is recording the husbands intake of regular solid food. He eats really well for me and has a feeding tube (I don't do the feeding tube). I'm suppose to push food and fluids on the wife and I generally can't get her too each too much. Although I have to say that she did really fantastic eating for me today, first time ever.
I watched some YouTube videos on how to keep pushing water on people with dementia. So now I keep very small glasses of water on the kitchen table for both of my clients at all times. The wife keeps picking them up to clear the table. I explain to her each time that we need to keep filled glasses on water on the table at all times to prevent her husband from getting dehydrated and put back into the hospital.
Some of the things that I asked for on the grocery list was strawberries (to infuse regular water with the strawberries for flavoring) and watermelon since it helps with hydration.
Today a different unscheduled nurse arrived because of a particular reason. The husband wanted to take a nap after this nurse took vitals and asked questions. I let him take a nap because he's suppose to be resting. Then a physical therapist showed up that I had no idea was coming and I felt bad about waking him up. He keeps telling everyone that he has a headache.
We have to hide the food log book, medications and that sort of thing because the wife takes off with the stuff.
By the way, my team group chat is still going off as I type this because the caregiver before me and the caregiver after me had mentioned there's blood issues happening after the husband is using the toilet to urinate. He couldn't urinate for me even though I pushed a bunch of water and juices on him today before the nurse got there.
If anyone has any helpful and insightful tips or hints, I sure could use some. Dementia is a terrible thing to have happen to anyone. I've had dementia clients but not really this far advanced.
I'm going out tonight for family stuff, but I'll be back sometime later or tomorrow. Thank you.
True Dough
(27,709 posts)But the title of your thread seems to indicate the toll this is taking on you.
Because your rate of pay has gone up, are you able to take more time off to recharge?
Take care, Niagara!
Niagara
(12,438 posts)It's a bit overwhelming to be honest. I had to tell my boss (I work for an agency) that I was in fact taking care of two people because I was told that I was suppose to be there for her.
I'm there for this husband and wife Monday through Friday, plus I do some side house cleaning hustles during the week. I actually let go of one of my house cleaning side hustles. I get Saturdays and Sundays off. I also informed everyone in group chat that I have a Do Not Disturb on my phone from 8:30 pm to 7:00am for my much needed downtime.
Thanks, True!
True Dough
(27,709 posts)Don't push yourself too hard.
Niagara
(12,438 posts)Time for me to crash for the night, or try to anyways.
Biophilic
(6,813 posts)I wish I had something useful to pass along to you. The best I can do is remind you to take care of yourself first. They depend on you and it sounds like youve developed a working relationship with them. Good for you.
Niagara
(12,438 posts)And sometimes I can't believe some of things that they say. They can be hysterical!
Sometimes these caregivers come into homes and start barking orders at the clients and at other caregivers. I don't do that. I like to build a rapport with them. I like to encourage them to get things done and not be bossy. It can be exhausting though.
Thanks, Biophilic!
Phoenix61
(18,927 posts)in mixed berry is very tasty. I mixed it half strength and gave it to my mother who had dementia. She didn't like water but would suck that stuff down.
Niagara
(12,438 posts)I've always used strawberries to sweeten the deal but I'll pick some up myself and give it a try.
Phoenix61
(18,927 posts)anymore but it's still available on-line.
ultralite001
(2,822 posts)If they can self feed -- great...
If you need to help, ice slushies can be spoon fed... If they can take flavored Pedialyte + you have access
to a blend, this can be a real treat... + may be an effective distraction. My dad loved them...
My mom preferred egg nogs... Got approval from the doctor + a blender recipe from mom's dietitian...
You are doing the Lord's work, Niagara... Please take care...
Niagara
(12,438 posts)Thankfully everyone is self-feeding.
I think flavored electrolytes is a great idea. I'm not sure why I didn't think of that.
Take care, ultralite001!
ultralite001
(2,822 posts)My folks didn't like the grape flavor...
https://www.pedialyte.com/products/freezer-pops/variety-pack
Niagara
(12,438 posts)This is encouraging and helpful.
ultralite001
(2,822 posts)My folks were so difficult to feed...
Actually, my mom was more difficult than my dad. She was troubled by mouth ulcers so soft foods were a blessing.
I got sandwich cookie cutters to remove the crusts from soft bread. When she was able, she would eat flowers +
hearts + moons.
https://www.amazon.com/HINZER-Sandwich-Breakfast-Stainless-Decruster/dp/B0FX75QTNG?ref_=ast_sto_dp&th=1
https://www.amazon.com/HINZER-Sandwich-Breakfast-Stainless-Decruster/dp/B0BQMKS3TW?ref_=ast_sto_dp&th=1
Trueblue Texan
(4,725 posts)But it is the absolute hardest job in the world. I always thought parenting was the hardest until I became a therapist. Now I know the toughest job is caregiving and caregiving dementia patients is the most difficult of all. One of the things we did to prevent wandering was to put a black rug in front of doors leading to outside--also works to keep them out of places they shouldn't go. Because dementia patients typically have diminished sensory apparatus, the black rug looks like a hole to them and they don't want to go near it. Playing classical music can soothe jangled nerves for both patient and caregiver. Popsicles are hydrating and delightful for all. Going through photo albums and old knick knacks and trinkets can be a great diversion for these patients because their long-term memories are typically much better than more recent memory. Sensory activities like drawing with fingers (or you can also use berries) on a tray covered in whipped cream or pudding is often fun--kids love this too. And it's a good way to get calories in them. Just some ideas off the top of my head. Hope it helps. Do not forget you are a hero and deserve twice what they are now paying you!
Niagara
(12,438 posts)The adult children aren't involved with this entire situation. The couple has trusted friends in charge of their well-being.
There's no activities to keep them occupied. I had the wife help me with a few household things today because I know it's important for them to stay active. I was debating on buying playdough and see if they would be interested in that entire arts and crafts type of things.
I've had dementia clients before, just never this far advanced and only one on one, not one on two.
Trueblue Texan
(4,725 posts)Even if you have to unfold clean towels or something, that would give them something meaningful to do. We used to do all kinds of practical things with our patients...let them brush the dog, fold the clothes (some clothes they folded over and over just so we could give them something to do--you're helping their motor skills as well) sweep the floor, dust, polish their shoes, wash windows and mirrors, wash the car if you're outside, wipe the sink and countertops. They may not finish any of these tasks, or do them well, but they are great exercises and make them feel useful. I used to carry a doll with me to see some patients. I'd let them dress the doll and undress her. For the men, I'd give them nuts and bolts to work with, matching them, sorting them, fastening them. Sing old familiar songs with them. Some patients love old hymns. I hope you get many rewarding moments with these charges because I know you are working like never before. Good luck and may the Universe bless you.