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Ziggysmom

(4,087 posts)
Wed Feb 11, 2026, 12:32 AM 7 hrs ago

I feel responsible

I had my husband admitted to memory care 12/22 after 2 back to back hospitalizations. First pneumonia and COPD, second for a GI bleed. His dementia was good one day and bad the next. Then he started staying up all night, rearranging his belongings and attempting to leave in the middle of the night - removing his oxygen which he required at 4 LPM 24/7. Not safe.

I admitted him to a facility which had different units, memory care, skilled nursing including hospice and assisted living. When I toured the place I was told he could move to different units depending on the level of care he needed.

On 1/17 they called and told me he fell and was sent to the ER where his head CT was normal but he was treated for DEHYDRATION. I was told his care plan would be updated. Hospital Social worker told me he would benefit from hospice care and I agreed.

A week or so later he had another fall, but was told no severe injury sustained. Fast forward to 2/6 at 2 AM I get a call from a hospital ER physician at a hospital we have never been to, telling me he is treating my husband for a sub arachnoid hemorrhage. The hospice nurses came to the hospital and suggested I not return him to nursing home. He was taken to the best hospice in the area. THE NURSING HOME HAS NEVER CALLED ME.

I spent all Friday with him and was not feeling well, was convinced to go home and get some sleep. Just one hour after I got home, I received the call he had passed. He did not regain consciousness but did squeeze my hand when I spoke to hIm earlier.

I feel so guilty for placing him in memory care. Like I was trying to keep him safe but I killed him.
We must demand better health care for everyone. Most all nursing homes require one year of private pay before they will accept Medicaid. His care cost was over $12,000 for the first month.

After he passed the medical examiner took his body to examine for unnatural death. I have not received or seen the death certificate yet. After I receive the cause and certificate I plan to see an attorney. This should not have happened.

Please do not be offended if I do not reply; I am having a difficult time doing anything right now except pray and cry. Please take a moment to tell those around you that you love them; they can be taken from us at any time.



20 replies = new reply since forum marked as read
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Skittles

(170,282 posts)
1. honestly, I would get a lawyer
Wed Feb 11, 2026, 12:35 AM
7 hrs ago

this is NOT your fault, that nursing home needs to be held accountable, WTF

very sorry you are having to deal with this

Figarosmom

(10,575 posts)
2. Yes, it always seems so sudden.
Wed Feb 11, 2026, 12:39 AM
7 hrs ago

Sorry about your loss and yes it sounds like you should see an attorney. Shouldn't have so many falls whole under care.

3catwoman3

(28,932 posts)
3. You need all your energy for you right now. I'm sure no one will be offended...
Wed Feb 11, 2026, 12:44 AM
7 hrs ago

…if you do not respond. We will be holding you in our hearts.

Bayard

(29,017 posts)
6. This is not your fault
Wed Feb 11, 2026, 01:13 AM
6 hrs ago

You did the best you could. I'm sure the hand squeeze meant he knew you were there, and appreciated it.

Be kind to yourself.

JMCKUSICK

(5,560 posts)
7. I am so very sorry Ziggysmom,
Wed Feb 11, 2026, 01:15 AM
6 hrs ago

Please be as kind to yourself as your husband would have been. You made the very best decision with the best information at the time you made it.

You are not responsible for others failure to live up to their duties.

Hold that squeezed hand memory dear, it told you everything you needed from your husband.
If you are comfortable, what is his name?

You are blanketed with love from all of us here at DU

HeartsCanHope

(1,564 posts)
8. My deepest condolences, Ziggysmom.
Wed Feb 11, 2026, 01:21 AM
6 hrs ago

I am so sorry. You and your family will be in my thoughts. Sending you love and light.

calimary

(89,331 posts)
9. I wish we could all hug you, literally. Not just with words.
Wed Feb 11, 2026, 01:28 AM
6 hrs ago

It sounds like you did all and everything you could for him.

And whenever it is that you might read this, just know that we care about you and are thinking about you A LOT as you go through such a jarring time.

I know prayers are being said, and sent your way. And as I’ve had the pleasure and gratitude of discovering, you’re not alone when you’re part of DU. Someone’s always here, and there’ll always be someone thinking about you and him as well.

Here’s a hug:
(((((((((( * ))))))))))

Ilikepurple

(483 posts)
10. It's hard not to feel guilty when you lose a loved one who depended are your care and judgement.
Wed Feb 11, 2026, 01:33 AM
6 hrs ago

I’m so sorry for your loss. But, please do not feel guilty. I’m almost positive whatever I say may not help or may only help temporarily. I made the decisions for both of my parents’ end of life care as close to their stated wishes as I could, but still have lingering guilt as to whether I should have done this or that differently. It’s so hard not to second guess your decisions, especially if you think you think you were in error trusting their medical care. I hope you find ways to alleviate the guilt you so unjustly place on yourself.

LoisB

(12,600 posts)
11. I am so sorry. It is not your fault. You did what should have been best for him;
Wed Feb 11, 2026, 01:40 AM
6 hrs ago

the nursing home failed you and him.

10 Turtle Day

(1,121 posts)
18. Please allow yourself some grace.
Wed Feb 11, 2026, 05:42 AM
2 hrs ago

We make decisions based on the best information we have at the time. Please do not beat yourself up over the nursing home failing both you and husband. My condolences for your loss.

mnhtnbb

(33,223 posts)
19. Sending you light and love Ziggysmom.
Wed Feb 11, 2026, 06:31 AM
1 hr ago

Please do not hold yourself responsible. I had to put my 90 year old father in memory care 25 years ago. Found him on the floor one Sunday afternoon when my husband and I had gone to visit and watch a football game with him. Ended up moving him to another facility recommended by his MD for skilled nursing care. He was confined to a wheelchair at that point to prevent more falls.
I don't know what the standard of practice is now once dementia patients start having falls. But I can tell you that after several months confined to a wheelchair, unable to feed himself, use the remote for the TV, or read, he decided to stop eating and I supported his decision. He went into a coma after 3 days. I sat with him and read to him on the last day, but had to go home to get dinner for my boys. Planned to pick my husband up at the airport and then return to his bedside. I got a call at 8 pm that he'd regained consciousness and come quickly. When I got there 20 minutes later, he was gone. I have heard other stories that often people who are dying will hold on until their loved ones aren't with them, to let go. We'll never know.
You did the best you could. Please don't hold yourself responsible.

OldBaldy1701E

(10,689 posts)
20. You did what you could with what was available.
Wed Feb 11, 2026, 07:58 AM
4 min ago

There is no fault to that. You did what was best for him based on your understanding of the situation. The fault is with those who did not handle the situation as expected.

Treated for dangerous dehydration and their response was that they will update his 'care plan'? Really??

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