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Related: Culture Forums, Support ForumsI feel responsible
I had my husband admitted to memory care 12/22 after 2 back to back hospitalizations. First pneumonia and COPD, second for a GI bleed. His dementia was good one day and bad the next. Then he started staying up all night, rearranging his belongings and attempting to leave in the middle of the night - removing his oxygen which he required at 4 LPM 24/7. Not safe.
I admitted him to a facility which had different units, memory care, skilled nursing including hospice and assisted living. When I toured the place I was told he could move to different units depending on the level of care he needed.
On 1/17 they called and told me he fell and was sent to the ER where his head CT was normal but he was treated for DEHYDRATION. I was told his care plan would be updated. Hospital Social worker told me he would benefit from hospice care and I agreed.
A week or so later he had another fall, but was told no severe injury sustained. Fast forward to 2/6 at 2 AM I get a call from a hospital ER physician at a hospital we have never been to, telling me he is treating my husband for a sub arachnoid hemorrhage. The hospice nurses came to the hospital and suggested I not return him to nursing home. He was taken to the best hospice in the area. THE NURSING HOME HAS NEVER CALLED ME.
I spent all Friday with him and was not feeling well, was convinced to go home and get some sleep. Just one hour after I got home, I received the call he had passed. He did not regain consciousness but did squeeze my hand when I spoke to hIm earlier.
I feel so guilty for placing him in memory care. Like I was trying to keep him safe but I killed him.
We must demand better health care for everyone. Most all nursing homes require one year of private pay before they will accept Medicaid. His care cost was over $12,000 for the first month.
After he passed the medical examiner took his body to examine for unnatural death. I have not received or seen the death certificate yet. After I receive the cause and certificate I plan to see an attorney. This should not have happened.
Please do not be offended if I do not reply; I am having a difficult time doing anything right now except pray and cry. Please take a moment to tell those around you that you love them; they can be taken from us at any time.
Skittles
(170,282 posts)this is NOT your fault, that nursing home needs to be held accountable, WTF
very sorry you are having to deal with this
Figarosmom
(10,575 posts)Sorry about your loss and yes it sounds like you should see an attorney. Shouldn't have so many falls whole under care.
and the lack of contact is inhumane and inexcusable
3catwoman3
(28,932 posts)if you do not respond. We will be holding you in our hearts.
essaynnc
(981 posts)Thanks for reminding me to tell those around me that I love them !!!!
Bayard
(29,017 posts)You did the best you could. I'm sure the hand squeeze meant he knew you were there, and appreciated it.
Be kind to yourself.
JMCKUSICK
(5,560 posts)Please be as kind to yourself as your husband would have been. You made the very best decision with the best information at the time you made it.
You are not responsible for others failure to live up to their duties.
Hold that squeezed hand memory dear, it told you everything you needed from your husband.
If you are comfortable, what is his name?
You are blanketed with love from all of us here at DU
HeartsCanHope
(1,564 posts)I am so sorry. You and your family will be in my thoughts. Sending you love and light.
calimary
(89,331 posts)It sounds like you did all and everything you could for him.
And whenever it is that you might read this, just know that we care about you and are thinking about you A LOT as you go through such a jarring time.
I know prayers are being said, and sent your way. And as Ive had the pleasure and gratitude of discovering, youre not alone when youre part of DU. Someones always here, and therell always be someone thinking about you and him as well.
Heres a hug:
(((((((((( * ))))))))))
Ilikepurple
(483 posts)Im so sorry for your loss. But, please do not feel guilty. Im almost positive whatever I say may not help or may only help temporarily. I made the decisions for both of my parents end of life care as close to their stated wishes as I could, but still have lingering guilt as to whether I should have done this or that differently. Its so hard not to second guess your decisions, especially if you think you think you were in error trusting their medical care. I hope you find ways to alleviate the guilt you so unjustly place on yourself.
LoisB
(12,600 posts)the nursing home failed you and him.
RainCaster
(13,478 posts)You are not alone.
Prairie_Seagull
(4,628 posts)Clarity comes in waves.
niyad
(130,633 posts)for you. Lean as hard as you need.
stage left
(3,241 posts)in this time of loss.
Grumpy Old Guy
(4,261 posts)I'm sorry for your loss. My heart goes out to you.
orleans
(36,751 posts)10 Turtle Day
(1,121 posts)We make decisions based on the best information we have at the time. Please do not beat yourself up over the nursing home failing both you and husband. My condolences for your loss.
mnhtnbb
(33,223 posts)Please do not hold yourself responsible. I had to put my 90 year old father in memory care 25 years ago. Found him on the floor one Sunday afternoon when my husband and I had gone to visit and watch a football game with him. Ended up moving him to another facility recommended by his MD for skilled nursing care. He was confined to a wheelchair at that point to prevent more falls.
I don't know what the standard of practice is now once dementia patients start having falls. But I can tell you that after several months confined to a wheelchair, unable to feed himself, use the remote for the TV, or read, he decided to stop eating and I supported his decision. He went into a coma after 3 days. I sat with him and read to him on the last day, but had to go home to get dinner for my boys. Planned to pick my husband up at the airport and then return to his bedside. I got a call at 8 pm that he'd regained consciousness and come quickly. When I got there 20 minutes later, he was gone. I have heard other stories that often people who are dying will hold on until their loved ones aren't with them, to let go. We'll never know.
You did the best you could. Please don't hold yourself responsible.
OldBaldy1701E
(10,689 posts)There is no fault to that. You did what was best for him based on your understanding of the situation. The fault is with those who did not handle the situation as expected.
Treated for dangerous dehydration and their response was that they will update his 'care plan'? Really??
