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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsHuntington's disease has been successfully treated for the first time, doctors tell BBC
Some good news.
Huntington's disease has been successfully treated for the first time, doctors tell BBC
— ð¤ BBC Breaking News (unofficial) (@bbcbreaking-bot.bsky.social) 2025-09-24T11:06:45.878Z
https://www.bbc.com/news/articles/cevz13xkxpro

FarPoint
(14,231 posts)For the patient and anyone who is a caregiver and or family.... So debilitating....
Sounds like this treatment is in the CRISPR technology advancements...
Dear_Prudence
(878 posts)Since I worked as a certified nurses' aid, but some residents are seared in my memory. One resident was a farmer, a strong giant of a man, in the late stage of Huntingtons. His dementia left him volatile and sometimes violent. So, unlike other residents, he did not receive the degree of human comfort provided by staff to other residents. I remember his wife visiting, sobbing as she left while walking down the hall. Half of children inherit the disease, so the pain to any family must be unbearable. At the time, I was a young struggling Catholic and I looked it up in the library's Catholic encyclopedia. The view offered for those couples affected by this disease was that birth control was still wrong, so spouses should avoid physical contact. That was when I knew, for the first time, that the Church was not delivering the love, mercy, wisdom of Jesus. This news is heartening, knowing scientists are making some progress, providing some slim measure if hope to families.
SickOfTheOnePct
(8,671 posts)Such a devastating disease for the patient and those who care for/love them.
Scrivener7
(57,301 posts)lame54
(38,468 posts)A successful treatment for a really terrible disease.
The wonders of medical research are evolving so quickly. The thought that this therapy could eventually delay or even stop the disease process in those patients yet to see symptoms--the Huntington-0 stage patients from the article--is a stunning prospect.
Three cheers and applause for science!
TlalocW
(15,664 posts)Have you heard about this Tylenol shit?
karin_sj
(1,251 posts)The mother of one of my close friends in high school had it, although I didn't know it at the time. I just remember her being very volatile and scary. You never knew when she was going to get angry about something. My friend had two sisters and three brothers. She died in her early 50s from Huntington's and her two sisters also died from it. I'm so glad that they are making progress in treating this horrific disease.
ck4829
(37,105 posts)where we can measure the breaths a patient takes and charge them for the oxygen they use. Score!
Aristus
(70,966 posts)a charge for Just In Case We Forgot Any Frivolous Charges?
ShazzieB
(21,664 posts)The NHS doesn't bill anyone a penny for anything. In the US otoh...
dflprincess
(29,036 posts)And let's remember that the right wing likes to tell us that medical advances don't come from countries with universal care.
Bernardo de La Paz
(58,838 posts)AllaN01Bear
(27,487 posts)Martin68
(26,518 posts)liberalla
(10,705 posts)Maru Kitteh
(30,711 posts)What a blessing this will be for so many families.
ananda
(33,342 posts)I remember Arlo Guthrie had to take the test
and turned out not to have it.
He showed Woody in the hospital bed where
he and his mother Marjorie were visiting,
maybe in Alice's Restaurant.
It was pretty awful.
Thanks Swede. This is wonderful news!
markpkessinger
(8,859 posts). . . I hope this treatment can be made available soon enough to help her.
Prairie_Seagull
(4,376 posts)In the linked BBC article it appears there is an implication for hope to others.