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meadowlander

(4,987 posts)
Mon Sep 22, 2025, 08:21 PM Monday

Of all the potential harms from Trump's announcement, let's not lose sight of the primary one - to autistic people.

Autism is part of the normal range of human variation and experience. Some people are very tall, some people are born to be very fat, some people have blue eyes, some people have hyper-sensitive hearing and touch, some people notice the forest first and some people notice the trees, some people have a strong social drive and some people don't.

Autism is genetic and has always been with us. Autistic people's contributions to human progress have been phenomenal - the first astronomers, botanists and food scientists, surgeons, architects, artists, poets, priests who introduced calendars and other cultural rituals, engineers, computer scientists, all benefited from individuals with strong attention to detail, pattern recognition, prodigious memories, and the ability to think differently.

By focusing on the cure to or prevention of autism we are telling the 1 in 40 humans born autistic that the way they were born is wrong, a disease, something to be done away with, a freak accident.

And that sets back our understanding of autism and the rights of autistic people more than 40 years.

I'm proud to be autistic. I don't need to be cured. I'm autistic because my father was and many of my other extended relatives, not because my mother took Tylenol a few times. Being autistic is an inextricable part of who I am and is a large part of what has enabled my success in life. If there was a pill I could take tomorrow that would make me not autistic you couldn't pay me to take it.

We should be celebrating the extraordinary gifts that come with autism and recognising that many of the challenges come not because there is something wrong with the autistic person but because our society has not been set up to address that level of human variation well. We need understanding and accommodation, not a "cure" or "prevention".

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Response to meadowlander (Original post)

meadowlander

(4,987 posts)
3. I didn't say that it was. Nor did I say that we shouldn't try to make life easier for autistic people where we can.
Mon Sep 22, 2025, 08:45 PM
Monday

What it is not is a disease or an infliction or something that needs to be cured or prevented.

You may work with autistic people but your post is displaying some seriously retrograde attitudes towards them.

Ms. Toad

(37,725 posts)
4. You have a very skewed view of autism, based on the population you work with.
Mon Sep 22, 2025, 08:50 PM
Monday

I have at least a dozen friends on the autism spectrum - probably more who haven't identified themselves to me. They are all productive, functional members of society. One is a counselor. A few are in the computer science field. One is in social work - and an elected official. Most are married, or in long-term relationships. I also know (at least) 4 children with autism. Of all of these, one may struggle in life - but it is too soon to tell. He is pre-teen and is still finding his way in the world.

Saying, as Meadowlander - a person with autism - did, that it is part of the normal spectrum of neurodiversity - and that they would not take a pill - if it became available - to make their autism vanish is not the same as saying, "I want my child to be deaf."

Sympthsical

(10,734 posts)
5. And no one said they aren't or that it isn't a spectrum.
Mon Sep 22, 2025, 08:57 PM
Monday

I am reacting to the OP's own words. Let me quote them:

By focusing on the cure to or prevention of autism we are telling the 1 in 40 humans born autistic that the way they were born is wrong, a disease, something to be done away with, a freak accident.


We should be focusing on a cure. Sure, autism doesn't affect all people the same way, and many people out there lead fulfilling lives with it.

But that does not erase how many people undergo profound suffering and disability because of the condition.

And this, "Focusing on a cure is somehow mean to people" is a blazingly unbelievable stance.

But maybe not that unbelievable, current online culture considered.

SickOfTheOnePct

(8,671 posts)
7. In the job I'm about to retire from...
Mon Sep 22, 2025, 09:10 PM
Monday

...with DoD, we had some autistic individuals who were analysts, and they were absolutely incredible, once we provided the accommodations they needed, such as office rather than a cubicle, etc.

However, I also have an autistic great-niece, and while I will continue to hope and pray that there are or will be therapies or something that will enable her to live a fuller life, I'm not hopeful that it will come to be.

She needs one-on-one support at all times, and the strain on her family is tremendous. They don't go anywhere with all three of the children because it's just too difficult. The strain on their marriage has been tremendous, and the strain on the other two children has been tremendous as well.

My nephew and his wife love their daughter unconditionally, and I don't want to imply in any way whatsoever that they wish she hadn't been born - that's absolutely not the case. But had there been a way for her to be born without autism (and like you, I'm not implying that today's declaration about Tylenol is that way), they would have taken it in a heartbeat.

Sympthsical

(10,734 posts)
11. I think popular culture has sanitized the condition to a great degree
Mon Sep 22, 2025, 10:41 PM
Monday

Ms. Toad isn't wrong in saying that my job makes it so that I see more profound instances more regularly. There is absolutely a broad span of functionality, but man. We are getting more and more kids with more and more profound manifestations of autism over time. Therapeutic services are getting overwhelmed.

Watching people not be able to live their lives, leave their homes, and struggle to care for their children - or even get something like simple safety supervision - is heartbreaking. It puts entire families on hold. You nailed all of the aspects.

And for someone to just pop in with, "If we focus on curing it, some people might feel bad" made me see absolute red.

I challenge anyone to work with these kids for a week and then bounce in and still say, "We shouldn't focus on curing this. This is totally fine."

Anti-medicine attitudes like RFK Jr's should not be responded to with other anti-medicine attitudes. Full stop.

meadowlander

(4,987 posts)
10. No, we should be focused on treating the symptoms to make autistic peoples' lives better
Mon Sep 22, 2025, 10:11 PM
Monday

*however that is defined by them*.

There is no part of me that is not autistic and there is no way to "cure autism" that is not an annihilation of what I am.

That's like saying "being gay makes peoples' lives harder so let's find a cure for being gay" or "let's cure racism by making everyone white".

That's the blazingly unbelievable stance for someone who "works with autistic kids" to be taking in 2025. Basically, that's just eugenics dressed up as concern. And way, way out of step with mainstream autism advocacy and disability rights.

Disaffected

(5,920 posts)
16. Yeah, the one I heard was "I don't want to deprive my child of the deaf culture".
Tue Sep 23, 2025, 01:03 AM
Tuesday

I suppose some with autism might feel similarly(??).

harumph

(3,018 posts)
9. I have 1 daughter who has diagnosed autism and 2 other kids that I suspect are on the spectrum.
Mon Sep 22, 2025, 09:31 PM
Monday

All of them are particularly intense in their endeavors and socially tone deaf. That they are very intelligent is an understatement. All are delightful people to be around and knowledgeable about the world. They are kind. They struggle with friendship though and tend to have one or two close friends and that's it. My extended family on my mother's side are pretty much the same; shy, reclusive, and numbers people. The spectrum thing is problematic because there is so much variety on the spectrum -
owing to our ignorance about the condition and having to define it broadly. I strongly suspect that there have got to be some very serious differences that are qualitative vs quantitative when going from non-verbal autism to those having no intellectual disabilities. We just don't know what those qualitative differences are yet. While some are excited about an autism cure - all should take care and distinguish between conditions that prompt head banging and those that got us to the moon. One of these things is not like the other.

the nelm

(173 posts)
14. Another thing that bothers me about this, so-called, large increase in the...
Mon Sep 22, 2025, 11:05 PM
Monday

numbers of diagnosed cases of autism is the complete lack of or ignoring that, like all other major advances in medical science, the ability to recognize and diagnose autism has grown and advanced as well. Medicine has come so far just in my lifetime alone. Of course there are more diagnosed cases of autism. Not because of any systemic cause, but because medical professionals now have more knowledge and tools to be able to recognize and diagnose the condition.

mokeyz

(90 posts)
15. so beautifully written
Mon Sep 22, 2025, 11:23 PM
Monday

Last edited Tue Sep 23, 2025, 12:17 AM - Edit history (1)

and thank you for sharing - we always seem to be medicating away the genius.

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